Thursday, August 6, 2009

Welcome!

Hi all... welcome to Indra's blog and a little bit of history on how the story goes...

Indra was diagnosed with a brain tumour on the 22nd June 2009. It is cancerous and very aggressive. It is a non-germinomatous germ cell tumour.

There were very few symptoms, just a few headaches in the preceeding week and double vision two days before diagnosis. Little did we know that a simple trip to an eye doctor has turned Indra's world upside down.

That was only six and a half weeks ago. Since then Indra has had six operations on his head to relieve pressure and two cycles of chemotherapy to try and shrink the tumour. It cannot be operated on at the moment as it is too dangerous. He has been to ICU four times and I cant even imagine how hard it has been for him. All of this surgery and treatment has taken its toll.

Unfortunately Indra is unable to talk to us right now but we are hopeful that one day soon he will start to speak again. All of Indra's symptoms are an effect of pressure in the brain. For the moment we just have to wait and see how this chemotherapy has worked. He may have a surgery further down the track to remove some of the tumour. We have no idea when Indra will be able to leave the hospital.

We hope he will be up for visits soon but this is going to be a long treatment process and a long recovery so please be patient and trust our judgement. We love Indra very much and miss having him at home.

This is a place where we want everyone to share their thoughts and feelings. I know Indra would think its a great idea!

24 comments:

Anonymous said...

Hi Karen, Indra & family

You know how much we think of you all. Indra has amazed us from the moment we met him. I don't know how you are all getting through this but you are doing it with so much courage, love and humour. We are always here if you need anything let us know. Will catch up with you next week. Your sister is a rock.
Lots of love
Kate,Terry,Nicolae,Anna & Ben

Tracey Darmawan said...

Great idea!

indar without a doubt I am here to support & cheer you on during your journey, I am also here to be a shoulder, ear or anything your Mum & family needs!

kaz, if there's ANYTHING you guys need at all, just say the word!!!

Hugs, kisses & prayers for all of you!!

XXXXXXXXXXX

love Tracey & family

jill said...

karen, what a brillant idea! as someone who too has spent many long weeks in pmh, remember its day by day week by week , and if indra`s stamia is anything to go by he`ll be giving you lip again soon!! thinking of you all at this difficult time , you & ricky are strong and together you will come thru this. i`ll be in touch jill

Karen Giyanto said...

Thanks to everyone for their thoughts and prayers.

Anonymous said...

Hey Karen... What a great idea! I'll pass this on to Bryce, and he'll pass it on at school. Thinking of you all everyday, you know how to find me for ANYTHING at all that you need :)

Love you all - fight on, Indra!

Lots of love from Mrs Nicol

Chels said...

My little Inj, or should I say BIG INJ now that you are nearly 13!!! (But to me you will always be my little Inj) You are such a special person, but I think you know that already :) You have been blessed with such a wonderful family. They have all been so strong and your mum has been there beside you for this entire journey... And you ya little bugga, you have been the strongest one out of us all. We pray for the day you can talk to us again, and to feel you return our BIG hugs and kisses, and even leave the hospital and go home. But no doubt once you are at home, in no time you will be getting in trouble for being in the fridge and cupboard for the tenth time in the day or for picking on Afian.... And watch out, I can still chase you boys with mum's wooden spoon :) Jokes aside, you know our prayers are with you Injy, we love you very very much.... Love always Aunty Chels, Uncle Choc & couz Jericho xoxox

Terri said...

I missed you today Inj...I got control of the remote tomorrow!

Love Aunty Terri

Anonymous said...

Hey Indra gangster nanna and pop are thinking of you every minute of the day and to Karen and Ris our prayers are with you. We are ery proud of you all and we love you very much.

Lots of love and best wishes for the future.

Anonymous said...

Hi Karen. This is a fantastic idea, thank you. I think of him every day and wonder how he is going. Indra is a fighter and he will get through this.

Peta and Kenz

xxx

Anonymous said...

Hey Indra.... It's gangster nanna. Missing your smiling face. We are with you all the way mate. Pop sends you his love & will see you soon Nanna will be up to see you next week.Be strong my darling. xxxxxx

Sally said...

Hi Karen,

Fantastic idea, our thoughts and prayers are with you all. Please let me know if you need anything.

Love Sally xo

Anonymous said...

Our thoughts and prayers are with you all. What a lovely idea for Indra, to do something like this for him.

Love, Gen, Gab and Bima

Anonymous said...

You need to hurry and get better Indra because Kali and Attila miss having you look after them when we parents are having a few noisy ones, just like a very patient and caring older bro for them, see you soon at another get together,
lex, ajie, kali and til
xxxxxxxxxxxxxxx

Anonymous said...

Karen & Family,

You are always on our minds.
Our hopes and thoughts are with you.
Please let us know if we can help in any way.

With love from
Kate, Martin, Kelly, Ally, Leanne, Pete & Jason

Anonymous said...

Karen, Indra & family

You are alway in our thoughts.
Our hopes and best wishes are with you.
Please let us know if we can help in any way.

Kate, Martin, Kelly, Ally, Leanne, Pete & Jason

Anonymous said...

Dear Inji,
All the tears I've cried for you the angels gathered up and turned them into raindrops so that you can hear that pop is near.Love you heaps mate, see you soon. Love Pop xxxx000

Anonymous said...

Karen - Mine and Kathryn's prayers are with your brave son during his treatment. Stay strong and I'm sure he will beat this - he has good genes and his gangster grandmother's fighting spirit. Prayers are being said for him universally. Take care.

Beryl (Crowe) Skiljan

Jenni, Dody, Daya and Yanti x said...

To Lovely Indra,
Inj, you have an inner strength that will get you through this. You have two wonderful parents and great bros' that are desperate for some serious teasing!
Just wish we were closer to give you all BIG hugs but we think of you every day and look forward to seeing you in Indonesia next year - Jackie Chan will buy you the biggest ice cream EVER! :-) Love you all - Hati Hati x x x

Theresa said...

Dear Karen, Ricky, Indra and Family,

You are all constantly on our minds. Dakota and Jesse can't wait to see you - they are constantly asking about you Indra. They are looking forward to being able to kick a soccer ball around with you.
Our love to all of you and please do not hesitate to contact us if you need anything.
Love Theresa, Eddie, Dakota and Jesse xxxxxx

nessa said...

hi guys i wasnt sure what to write and how to do it.But here goes...
I love you guys heaps and would do anything for you's.I miss your cheekiness indra and your silly jokes and tricks you play on people get better soon as i miss everything about you!!!!!
your a very strong willed boy (teenager) just like you mum never give up when theres a goal ahead that you want to achieve,if anyone can do this you can.i love yous very much please just let me know if you need anything.
Love Aunty Nessa xoxoxoxox

Anonymous said...

Dear Indra,

Hey buddy all the best, we are all thinking of you at home at this hard and sad time of your life. We dont know what youre going through, but we do know that you are very STRONG young lass and we are here for you and thinking of you all the time matey. You are a brave and and a lovely young boy. We are always here for you xxxx

Lots of love Dianne, Sean and family at the Farm xxxx

Anonymous said...

Hey Indra

Just letting you know PKSC u13's are 4th in the league at the moment. Only 3 more games to go till the end of the season. We've got the team photo with you on and will drop it at home for you soon. All the lads are thinking of you mate, we desperately want you back fighting fit for next season.

Stay strong buddy, love from

Alan (coach) Sara, Dean, Taylor, Owen and Charlie.x

jill beattie said...

hey there karen , great news hope it continues. all the girls from wph, wish you all well and have offered any help support they can were all thinking of you !!! jill

Nick Nicol said...

Hey Inj,
It was so great to see you at home walking and talking again. It must of been so great to be home even if it was only for a night. You are doing really great. Keep it up and in no time you will be back on the soccer field again...

Mr Nicol (Nick) and Terrie