Still here...

Well, plodding along - the weeks are adding up now. Having MRI and lumbar puncture tomorrow. Due to finish chemo end of October. We will be having radiotherapy for 5 weeks or so after that. Although I think the plan is to get him home sometime between then. Indra is suffering very bad short term memory loss as a result of all this illness. He cannot remember who has visited him or even what he had to eat at breakfast.

He never complains, he always does what he's asked and is working really hard to get better. Many times I've thought about how hard this is but Indra is the one doing the hard yards... he deserves so much more than this!

He's still smiling and that's what's important right now.

Chemo 4 done and dusted !!!!

Well, that's another one over. Indra is finding he gets so tired and unwell when he has chemo now, thankfully the next one is only 3 days worth. 5th chemo starting 2nd Oct then only one more to go after that :)

We are having a MRI and lumbar puncture on the 29th and then we should find out what the next process is. Could be radiation and possibly surgery although they seem to think we may not need it.

Indra is starting to get abit more enthusiastic bout physiotherapy and his ankles are starting to get close to not having the casts anymore. Hopefully we will have him standing by the end of the month. We are looking forward to when we can get him home!!!

Week 13 - here we come!

Hi people... what a week. Indra had a great b'day, we got the ok to eat again so he had the biggest piece of cake EVER!!!! :) more b'day pics coming!

So now Indra is eating we are hoping he will put some weight on. He stood for the first time on Friday with a standing frame and some help. Unfortunately he has casts on his legs to get his ankles back into range so we have to wait abit longer for him to be able to stand for more than a minute. He is having another round of chemotherapy at present and lots of physio and stuff inbetween.

Thanks to all his school friends for the b'day cards - he loved your messages. Im sure he will post on here soon.

HAPPY BIRTHDAY!

Our Lovely Indra,

We miss you,
We adore you,
We love you!

Happy 13th Birthday...
Lots of love and kisses xxxx

Mum, Dad, Dane and Afian :)

HELLO EVERYBODY!

IT IS BIG INJ

I AM REALLY HOT AT THE MOMENT

I AM REALLY EXCITED IN HOSPITAL ABOUT MY FOOTBALL TEAM

LOVE BIG INJ (BLACK JESUS)

PKSC under 13's

A big fingers crossed for Indra's soccer team for the final next w'end. We know you can do it and Indra wants to hear that you make it through the first final - he has great faith in you boys :)

Indra turns 13 on Wednesday!

Surgery went well on thursday, Indra was abit sore afterwards but doin okay. We are looking forward to his B'day this week, hopefully he will be able to have a little bit of ice-cream cake we have for him.
Chemo (4th) starts again next weekend. He will have another scan before chemo 5. Everyday he seems to be getting stronger. We hope he continues to improve as quick as he has. We still have no idea when Inj will be able to come home.