Friday, March 29, 2013




Hey Guys!  Time to give back a little... Indra has agreed to be part of a fundraising exhibition.  All monies raised will go to Cancer Support WA.  A wonderful photographer has donated his time and expertise to photograph cancer survivors, these will be displayed in the city as a glass exhibition.  Please donate, every little bit helps xxx



http://youarebeautiful.gofundraise.com.au/page/indra_alfonsi

Photo: How awesome for Indra to be part of...

Monday, February 4, 2013

Update

Hi Peeps, Indra has just had his review. MRI and bloods have all come back clear again and we are now onto annual oncology reviews.  That means only 2 MRI's to go! So 2 more years and he has officially made the 5yr survival rate.  
Indra will always have to see specialists and take medication for the rest of his life but he has come so far.  He truly is amazing and always looks at life with such enthusiasm and positivity.  
So he is just starting year 12, still working at Macca's and doing great at it.  Next agenda is the dreaded drivers license :)

Wednesday, November 7, 2012

ALL GOOD ON THE HOME FRONT...

Indra is doing really great... loving his new job at Macca's and saving lots of money.  His health is fine and we are now considering getting the inevitable L plates.. Scary!  Year 11 finishes this week and onto his final year and graduation in 2013!  We are so proud of him... he has come so far! Love you to bits Inj aka BBJ and we are very lucky to have you.

LIFE IS A GIFT!
 


Sunday, September 16, 2012

For Two Special Angels

This week has been very bittersweet as we remember two very special  girls named Tayla and Evie that Indra had the privelage of getting to know on his cancer journey, sadly they both passed away 2yrs ago.  I like to think they are giggling together and sending Indra sunshine.  We quite often credit them for beautiful clear blue skies.  I have reposted a poem that Tayla wrote about Indra.  How very special she was... 
I’ll Always Remember You, 
I remember the first time I saw you.
I couldn’t see your face behind the plastic mask and the blood stained bandages.
A nurse was playing around with one of the hundred cords attached to you.
A woman sat next to your bed with red eyes and a soggy tissue in her fist.
I assumed she was your mother.
You were so still in your bed, entangled in tubes and things I hadn’t seen before
Mum and I both looked into your window and then quickly to the floor.
I concentrated on the wheels of my chair rolling over the cold, white floor until your room was behind us.
I saw you again the next day, I didn’t mean to stare.
I had never seen so many pumps on one stand.
Your eyes were closed and I felt relieved.
It would be soul destroying if you were to see what you looked like right now.
They told me you had come from ICU, had brain tumours and was in a coma.
You weren’t expected to live for much longer.
My heart sank.
A few days later, as mum pushed me up the hallway passed your room I noticed that your eyes were open.
The TV was on but you were staring out the window.
A few more days later when I passed your room again,
You looked at me. I nervously smiled but your mouth didn’t even twitch.
There were no emotion in your eyes, they were hollow and vacant.
And suddenly I felt all your emptiness.
People were telling me you had woken, but you were still very sick.
Over the next week I watched your room become filled with cards, balloons, drawing, and letters.
I couldn’t help but ask “Mum, what’s that?”
“I think it’s a hoist” we both looked away and I didn’t reply.
A couple of weeks later I saw you again.
You were sitting in a chair watching TV, a few less cords around you.
There was still nothing showing on your face, but you looked different somehow.
People told me you had surprised everyone and was recovering so quickly.
I could see it too.
Every time I saw you, your had one less pump on your stand, one less cord in your arm, one more ounce of energy.
One day your mum came in crying tears of joy, it was her birthday.
You had muttered your first words in months.
You said ‘Mum’
A few weeks later when I was in the school room,
Your mum wheeled you into the room in a kind of chair that had so many bits here and there, it looked more like a space ship.
We played uno with the school teacher; we had to keep reminding you it was your turn.
Your words were few and short, your movements were stiff.
But you won, twice.
It was then I noticed you were wearing a nappy and I nearly cried.
No 13 year old should have to do that.
Now months and months later, you’re a walking a miracle.
Today you walked in, a bit wobbly. With plastic things around your ankles.
You still have no hair, but your smile was so overwhelmingly bright.
You sat down and you told me how awesome and ‘fully sick’ you were, followed by a slow nod and raised eyebrows.
I laughed, and wanted to tell you that you didn’t have to tell me you were awesome.
I already knew that.
I wondered if you actually realised how amazing you really are,
You don’t remember the horrendous things that happened.
You just know what is happening now, maybe that’s a good thing.
You gave me a hug and left.
And even if tomorrow you don’t remember me and I have to introduce myself to you for the hundredth time,  I wouldn’t care because I will never, could never forget you.

Evie and Tayla's stories...                      www.nomatterwhat.com.au


SWEET 16 xxx

Indra has just celebrated his 16th Birthday, definately a milestone in our eyes!  He has started shifts at Macca's this week and is loving it.  

Saturday, August 25, 2012

WATCH OUT WORLD - INDRA AKA B.B.J NOW HAS HIS FIRST JOB AT MACCAS!

Monday, August 13, 2012

LOVE YOU LONG TIME!

Hey guys!

I know its been awhile... what a year we have had.  Last MRI in July was clear and we are now allowed to go 6 monthly with the scans.   Indra is studying hard and passing year 11.  we ahd a lovely holiday to the Gili islands in March, absolutely beautiful and great to kick back with our UK friends.  Lots of sun, sand, snorkelling and shots for the adults of course.  



Wednesday, February 29, 2012

MRI clear!!!

Yay... everything is great with Indra's scan and blood results showing no sign of cancer - phew... can breathe easily for another 4 months :) Consultant is very VERY happy with the outcome as are we .... HUGE love goes out to the big black jesus, you are AWESOME!!!!!!

Wednesday, February 8, 2012

2012


SO ... beginning of another year. As most of you follow us on FB i haven't tended to update this quite as much... just remember no news is GOOD news :) We have MRI scan and reviews coming up this month... getting that angsty feeling again although I know all will be fine - IT HAS TO BE! he has come way to far for this horrible disease to raise its ugly head. School will be a bit of a challenge as Indra still suffers fatigue but he is determined to pass year 11 and 12! He just returned from a trip to Sydney where he got to do amazing things with Camp Quality... climbing the harbour bridge was one of them!!!! Photos to come soon xxx

Tuesday, November 8, 2011

Wednesday, November 2, 2011


Hey Peeps,

Im sure most of you have seen FB but incase you haven't... Indra is still cancer free! Yee-ha!
We next have review in Feb/Mar ( it will be 2yrs remission by then) and it will be onto 6 monthly reviews after that. Rehab and physio both seem very pleased with the outcome, as Indra is yet to plateau and continues to progress. Looking forward to the five year mark - it will be the biggest party ever!!!!! We have just had a lovely holiday to Bali and Java to see Indra's grandparents and looking forward to wrapping up year 10 and enjoying Christmas.

Friday, September 9, 2011

Friday, August 5, 2011

WHAT A WEEK!

Indra we are so proud of you! Coming on in leaps and bounds...
That's right people, not only did he score 96% and 86% in his maths exams but he played the last 5 minutes of a football match today against the Elite soccer team. Dives and all :) Keep it up kiddo!!

Sunday, July 17, 2011

A Poem From Tayla

This is a poem that was written from a very special girl we met in 3B. Unfortunatey she lost her battle with cancer but her mum found this whilst going through all her writing. RIP Tayla, we miss your beautiful smile and your infinite wisdom!

I’ll Always Remember You,

I remember the first time I saw you.

I couldn’t see your face behind the plastic mask and the blood stained bandages.

A nurse was playing around with one of the hundred cords attached to you.

A woman sat next to your bed with red eyes and a soggy tissue in her fist.

I assumed she was your mother.

You were so still in your bed, entangled in tubes and things I hadn’t seen before

Mum and I both looked into your window and then quickly to the floor.

I concentrated on the wheels of my chair rolling over the cold, white floor until your room was behind us.

I saw you again the next day, I didn’t mean to stare.

I had never seen so many pumps on one stand.

Your eyes were closed and I felt relieved.

It would be soul destroying if you were to see what you looked like right now.

They told me you had come from ICU, had brain tumours and was in a coma.

You weren’t expected to live for much longer.

My heart sank.

A few days later, as mum pushed me up the hallway passed your room I noticed that your eyes were open.

The TV was on but you were staring out the window.

A few more days later when I passed your room again,

You looked at me. I nervously smiled but your mouth didn’t even twitch.

There were no emotion in your eyes, they were hollow and vacant.

And suddenly I felt all your emptiness.

People were telling me you had woken, but you were still very sick.

Over the next week I watched your room become filled with cards, balloons, drawing, and letters.

I couldn’t help but ask “Mum, what’s that?”

“I think it’s a hoist” we both looked away and I didn’t reply.

A couple of weeks later I saw you again.

You were sitting in a chair watching TV, a few less cords around you.

There was still nothing showing on your face, but you looked different somehow.

People told me you had surprised everyone and was recovering so quickly.

I could see it too.

Every time I saw you, your had one less pump on your stand, one less cord in your arm, one more ounce of energy.

One day your mum came in crying tears of joy, it was her birthday.

You had muttered your first words in months.

You said ‘Mum’

A few weeks later when I was in the school room,

Your mum wheeled you into the room in a kind of chair that had so many bits here and there, it looked more like a space ship.

We played uno with the school teacher; we had to keep reminding you it was your turn.

Your words were few and short, your movements were stiff.

But you won, twice.

It was then I noticed you were wearing a nappy and I nearly cried.

No 13 year old should have to do that.

Now months and months later, you’re a walking a miracle.

Today you walked in, a bit wobbly. With plastic things around your ankles.

You still have no hair, but your smile was so overwhelmingly bright.

You sat down and you told me how awesome and ‘fully sick’ you were, followed by a slow nod and raised eyebrows.

I laughed, and wanted to tell you that you didn’t have to tell me you were awesome.
I already knew that.

I wondered if you actually realised how amazing you really are,

You don’t remember the horrendous things that happened.

You just know what is happening now, maybe that’s a good thing.

You gave me a hug and left.

And even if tomorrow you don’t remember me and I have to introduce myself to you for the hundredth time,

I wouldn’t care because I will never, could never for get you.

MRI RESULT

All is good in the world of Indra, results are wonderful and we are still in remission. No more testing til November.

Tuesday, June 21, 2011

2YRS SINCE DIAGNOSES!

OMG... two years since our world turned upside down.

Current score: INDRA 1 - CANCER 0


You are continuing to improve everyday Indra We are so proud of you! Thank you to everyone who has continued to support us throughout such a difficult time. xxx

Friday, April 1, 2011

RESULTS!!

Its been awhile but have finally managed to update. For those of you who don't know, Indra's last MRI came back clear. We can breathe a bit easier as our next review isn't until June, and it will be 2yrs since diagnosis by then.
It doesn't feel as raw anymore although every so often it creeps back to remind me all that my gorgeous boy has been through. All that US as a family has been through.

Monday, March 7, 2011

Plodding along :)

One week til MRI... we will not have news from that until March 23rd when we have our review. Going to see the neurologist this week. Indra is still improving in all aspects. He has not missed a day of school this year and I cannot believe sometimes how far he has come !!! What an inspiration...

Saturday, February 12, 2011

1 YR CANCER FREE!!!!!!!!!

So its now February, Indra has been in remission for a whole year... time flies even when you are not having fun. LOL! Indra is back at school full-time and enjoying it alot. We have MRI coming up next month. Physically Indra is still improving however he is not ready to play football just yet.

Monday, January 3, 2011


Noodles... Japan style!