Friday, March 29, 2013
Hey Guys! Time to give back a little... Indra has agreed to be part of a fundraising exhibition. All monies raised will go to Cancer Support WA. A wonderful photographer has donated his time and expertise to photograph cancer survivors, these will be displayed in the city as a glass exhibition. Please donate, every little bit helps xxx
http://youarebeautiful.gofundraise.com.au/page/indra_alfonsi
Monday, February 4, 2013
Update
Indra will always have to see specialists and take medication for the rest of his life but he has come so far. He truly is amazing and always looks at life with such enthusiasm and positivity.
So he is just starting year 12, still working at Macca's and doing great at it. Next agenda is the dreaded drivers license :)
Wednesday, November 7, 2012
ALL GOOD ON THE HOME FRONT...
LIFE IS A GIFT!
Sunday, September 16, 2012
For Two Special Angels
I already knew that.
Evie and Tayla's stories... www.nomatterwhat.com.au
SWEET 16 xxx
Monday, August 13, 2012
LOVE YOU LONG TIME!
Wednesday, February 29, 2012
MRI clear!!!
Wednesday, February 8, 2012
2012
SO ... beginning of another year. As most of you follow us on FB i haven't tended to update this quite as much... just remember no news is GOOD news :) We have MRI scan and reviews coming up this month... getting that angsty feeling again although I know all will be fine - IT HAS TO BE! he has come way to far for this horrible disease to raise its ugly head. School will be a bit of a challenge as Indra still suffers fatigue but he is determined to pass year 11 and 12! He just returned from a trip to Sydney where he got to do amazing things with Camp Quality... climbing the harbour bridge was one of them!!!! Photos to come soon xxx
Tuesday, November 8, 2011
Wednesday, November 2, 2011
Hey Peeps,
Im sure most of you have seen FB but incase you haven't... Indra is still cancer free! Yee-ha!
We next have review in Feb/Mar ( it will be 2yrs remission by then) and it will be onto 6 monthly reviews after that. Rehab and physio both seem very pleased with the outcome, as Indra is yet to plateau and continues to progress. Looking forward to the five year mark - it will be the biggest party ever!!!!! We have just had a lovely holiday to Bali and Java to see Indra's grandparents and looking forward to wrapping up year 10 and enjoying Christmas.
Friday, September 9, 2011
Friday, August 5, 2011
WHAT A WEEK!
That's right people, not only did he score 96% and 86% in his maths exams but he played the last 5 minutes of a football match today against the Elite soccer team. Dives and all :) Keep it up kiddo!!
Sunday, July 17, 2011
A Poem From Tayla
This is a poem that was written from a very special girl we met in 3B. Unfortunatey she lost her battle with cancer but her mum found this whilst going through all her writing. RIP Tayla, we miss your beautiful smile and your infinite wisdom!
I’ll Always Remember You,
I remember the first time I saw you.
I couldn’t see your face behind the plastic mask and the blood stained bandages.
A nurse was playing around with one of the hundred cords attached to you.
A woman sat next to your bed with red eyes and a soggy tissue in her fist.
I assumed she was your mother.
You were so still in your bed, entangled in tubes and things I hadn’t seen before
Mum and I both looked into your window and then quickly to the floor.
I concentrated on the wheels of my chair rolling over the cold, white floor until your room was behind us.
I saw you again the next day, I didn’t mean to stare.
I had never seen so many pumps on one stand.
Your eyes were closed and I felt relieved.
It would be soul destroying if you were to see what you looked like right now.
They told me you had come from ICU, had brain tumours and was in a coma.
You weren’t expected to live for much longer.
My heart sank.
A few days later, as mum pushed me up the hallway passed your room I noticed that your eyes were open.
The TV was on but you were staring out the window.
A few more days later when I passed your room again,
You looked at me. I nervously smiled but your mouth didn’t even twitch.
There were no emotion in your eyes, they were hollow and vacant.
And suddenly I felt all your emptiness.
People were telling me you had woken, but you were still very sick.
Over the next week I watched your room become filled with cards, balloons, drawing, and letters.
I couldn’t help but ask “Mum, what’s that?”
“I think it’s a hoist” we both looked away and I didn’t reply.
A couple of weeks later I saw you again.
You were sitting in a chair watching TV, a few less cords around you.
There was still nothing showing on your face, but you looked different somehow.
People told me you had surprised everyone and was recovering so quickly.
I could see it too.
Every time I saw you, your had one less pump on your stand, one less cord in your arm, one more ounce of energy.
One day your mum came in crying tears of joy, it was her birthday.
You had muttered your first words in months.
You said ‘Mum’
A few weeks later when I was in the school room,
Your mum wheeled you into the room in a kind of chair that had so many bits here and there, it looked more like a space ship.
We played uno with the school teacher; we had to keep reminding you it was your turn.
Your words were few and short, your movements were stiff.
But you won, twice.
It was then I noticed you were wearing a nappy and I nearly cried.
No 13 year old should have to do that.
Now months and months later, you’re a walking a miracle.
Today you walked in, a bit wobbly. With plastic things around your ankles.
You still have no hair, but your smile was so overwhelmingly bright.
You sat down and you told me how awesome and ‘fully sick’ you were, followed by a slow nod and raised eyebrows.
I laughed, and wanted to tell you that you didn’t have to tell me you were awesome.
I already knew that.
I wondered if you actually realised how amazing you really are,
You don’t remember the horrendous things that happened.
You just know what is happening now, maybe that’s a good thing.
You gave me a hug and left.
And even if tomorrow you don’t remember me and I have to introduce myself to you for the hundredth time,
I wouldn’t care because I will never, could never for get you.
MRI RESULT
Tuesday, June 21, 2011
2YRS SINCE DIAGNOSES!
Current score: INDRA 1 - CANCER 0
You are continuing to improve everyday Indra We are so proud of you! Thank you to everyone who has continued to support us throughout such a difficult time. xxx
Friday, April 1, 2011
RESULTS!!
It doesn't feel as raw anymore although every so often it creeps back to remind me all that my gorgeous boy has been through. All that US as a family has been through.